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| Encounter |
D0021
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Generic Comment
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Antenatal General (AG), Birth Child (BC), Labour & Birth Mother (LBM), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC), Postpartum Mother (PPM)
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BORN collects this variable but due to personal health information (PHI) or sensitivity it is not available for data request.
Data Definition:
Comment to capture details not identified in other data elements.
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D0024-1
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Newborn Congenital Anomalies Identified
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Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
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Data Definition:
Indication whether there were suspected or confirmed newborn congenital anomalies
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D0024ICD
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Newborn Congenital Anomalies Suspected
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Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
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Data Definition:
Identify all suspected congenital anomalies. If a suspected congenital anomaly is later confirmed as not present, it should remain as suspected. Then None or any other confirmed anomalies should be entered in Congenital Anomalies Confirmed.
Pick List Value:
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Absent cavum septum pellucidum (CSP)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Absent cerebellar vermis
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Acrania or Anencephaly
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Arachnoid cyst(s)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Arnold Chiari Malformation
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Aqueductal stenosis
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Corpus Callosum - Agenesis (ACC)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Corpus Callosum - Hypoplasia
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Dandy walker malformation/ variant (DWM)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Encephalocele
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Enlarged cisterna magna
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Holoprosencephaly
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Hydrocephalus
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Hypotonia, unspecified
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Lissencephaly
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Macrocephaly
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Microcephaly
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Polymicrogyria
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Posterior fossa cyst
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Sacral agenesis
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Sacrococcygeal teratoma (SCT)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Seizures
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Spina Bifida with hydrocephalus
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Spina Bifida without hydrocephalus
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Ventriculomegaly - Mild-Moderate (11-14.9 mm)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Ventriculomegaly - Severe (>15 mm)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Other - malformations of the nervous system
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Other - malformations of the brain
Eye Anomalies \ Anophthalmos
Eye Anomalies \ Congenital cataract
Eye Anomalies \ Congenital glaucoma
Eye Anomalies \ Microphthalmos
Eye Anomalies \ Other - malformations of eye
Ear, Face and Neck Anomalies \ Choanal atresia
Ear, Face and Neck Anomalies \ Ears - Anotia
Ear, Face and Neck Anomalies \ Ears - Microtia
Ear, Face and Neck Anomalies \ Macroglossia
Ear, Face and Neck Anomalies \ Micrognathia
Ear, Face and Neck Anomalies \ Nose - Absent
Ear, Face and Neck Anomalies \ Nose - Hypoplastic
Ear, Face and Neck Anomalies \ Retrognathia
Ear, Face and Neck Anomalies \ Other - malformations of ear
Ear, Face and Neck Anomalies \ Other - malformations of the face and neck
Oro-facial Clefts \ Cleft lip
Oro-facial Clefts \ Cleft lip with cleft palate
Oro-facial Clefts \ Cleft palate
Oro-facial Clefts \ Pierre Robin Sequence
Thorax Anomalies \ Bronchopulmonary sequestration (BPS)
Thorax Anomalies \ Congenital high airway obstruction (CHAOS)
Thorax Anomalies \ Cystic adenomatous malformation of lung (CCAM)
Thorax Anomalies \ Diaphragmatic hernia (CDH)
Thorax Anomalies \ Other - congenital malformations of lung
Thorax Anomalies \ Other - malformations of the diaphragm
Cardiovascular Anomalies \ Aortic arch - Double
Cardiovascular Anomalies \ Aortic arch - Interrupted
Cardiovascular Anomalies \ Aortic arch - Right
Cardiovascular Anomalies \ Aortic atresia/Hypoplastic aortic arch
Cardiovascular Anomalies \ Aortic valve stenosis
Cardiovascular Anomalies \ Arrhythmia
Cardiovascular Anomalies \ Atrial isomerism (heterotaxy) - Left
Cardiovascular Anomalies \ Atrial isomerism (heterotaxy) - Right
Cardiovascular Anomalies \ Atrial septal defect (ASD)
Cardiovascular Anomalies \ Atrioventricular septal defect (AVSD)
Cardiovascular Anomalies \ Cardiomegaly
Cardiovascular Anomalies \ Coarctation of aorta
Cardiovascular Anomalies \ Congenital heart block (complete and incomplete)
Cardiovascular Anomalies \ Dextrocardia
Cardiovascular Anomalies \ Discordant atrioventricular connection
Cardiovascular Anomalies \ Double inlet ventricle (Single ventricle)
Cardiovascular Anomalies \ Double outlet right ventricle (DORV)
Cardiovascular Anomalies \ Ebstein anomaly
Cardiovascular Anomalies \ Hypoplastic left heart (HLHS)
Cardiovascular Anomalies \ Hypoplastic right heart (HRHS)
Cardiovascular Anomalies \ Mitral valve atresia
Cardiovascular Anomalies \ Mitral valve insufficiency
Cardiovascular Anomalies \ Mitral valve stenosis
Cardiovascular Anomalies \ Patent ductus arteriosus (PDA) - >37 weeks
Cardiovascular Anomalies \ Patent/Persistent foramen ovale (PFO)/Premature closure of atrial septum
Cardiovascular Anomalies \ Pericardial effusion
Cardiovascular Anomalies \ Pulmonary valve atresia
Cardiovascular Anomalies \ Pulmonary valve dysplasia
Cardiovascular Anomalies \ Pulmonary valve stenosis
Cardiovascular Anomalies \ Situs inversus (cardiac and abdominal)
Cardiovascular Anomalies \ Tetralogy of Fallot (TOF)
Cardiovascular Anomalies \ Total anomalous pulmonary venous connection (TAPVC)/Partial anomalous pulmonary venous connection (PAPVC)
Cardiovascular Anomalies \ Transposition of great vessels (TGV)
Cardiovascular Anomalies \ Tricuspid atresia/stenosis
Cardiovascular Anomalies \ Tricuspid regurgitation
Cardiovascular Anomalies \ Tricuspid valve dysplasia
Cardiovascular Anomalies \ Truncus arteriosus (common arterial truncus)
Cardiovascular Anomalies \ Vascular ring
Cardiovascular Anomalies \ Vena cava, bilateral superior (SVC)
Cardiovascular Anomalies \ Vena cava, interrupted inferior (IVC)
Cardiovascular Anomalies \ Vena cava, persistent left superior (SVC)
Cardiovascular Anomalies \ Ventricular disproportion (RV/LV discrepancy)
Cardiovascular Anomalies \ Ventricular septal defect (VSD)
Cardiovascular Anomalies \ Other cardiac malformations
Abdominal Wall Defects \ Gastroschisis
Abdominal Wall Defects \ Omphalocele (exomphalos)
Abdominal Wall Defects \ Other - congenital malformations of abdominal wall
Gastrointestinal & Abdominal Anomalies \ Abnormal stomach (including small/absent stomach)
Gastrointestinal & Abdominal Anomalies \ Biliary atresia (atresia of bile ducts)
Gastrointestinal & Abdominal Anomalies \ Bowel obstruction
Gastrointestinal & Abdominal Anomalies \ Duodenal atresia/stenosis
Gastrointestinal & Abdominal Anomalies \ Esophageal atresia (without fistula)
Gastrointestinal & Abdominal Anomalies \ Esophageal atresia with tracheo-esophageal fistula (TEF)
Gastrointestinal & Abdominal Anomalies \ Tracheoesophageal fistula (TEF) without esophageal atresia
Gastrointestinal & Abdominal Anomalies \ Hirschsprung disease
Gastrointestinal & Abdominal Anomalies \ Imperforate anus (congenital absence, atresia, stenosis of anus)
Gastrointestinal & Abdominal Anomalies \ Large intestine atresia/stenosis
Gastrointestinal & Abdominal Anomalies \ Pyloric stenosis
Gastrointestinal & Abdominal Anomalies \ Rectal atresia/stenosis with/without fistula
Gastrointestinal & Abdominal Anomalies \ Small bowel, abnormal
Gastrointestinal & Abdominal Anomalies \ Small intestine atresia/stenosis (excluding duodenum)
Gastrointestinal & Abdominal Anomalies \ Umbilical hernia
Gastrointestinal & Abdominal Anomalies \ Other - malformations of gastrointestinal system
Urinary Anomalies \ Bladder/cloacal exstrophy
Urinary Anomalies \ Congenital hydronephrosis
Urinary Anomalies \ Cystic kidneys - other
Urinary Anomalies \ Duplex kidney/collecting system
Urinary Anomalies \ Echogenic kidney(s)
Urinary Anomalies \ Ectopic/pelvic kidney
Urinary Anomalies \ Lower urinary tract obstruction
Urinary Anomalies \ Megacystis
Urinary Anomalies \ Megaureter
Urinary Anomalies \ Multicystic dysplastic kidney(s)
Urinary Anomalies \ Polycystic kidney, autosomal dominant
Urinary Anomalies \ Polycystic kidney, autosomal recessive
Urinary Anomalies \ Posterior urethral valves (PUV)
Urinary Anomalies \ Prune belly
Urinary Anomalies \ Renal agenesis - bilateral
Urinary Anomalies \ Renal agenesis - unilateral
Urinary Anomalies \ Renal cyst
Urinary Anomalies \ Renal Dysplasia
Urinary Anomalies \ Ureterocoele
Urinary Anomalies \ Other - malformations of the urinary system
Genital Anomalies \ Ambiguous genitalia/Indeterminate sex
Genital Anomalies \ Cryptorchidism/undescended testicle(s) >37 weeks
Genital Anomalies \ Epispadias
Genital Anomalies \ Hydrocoele
Genital Anomalies \ Hypospadias
Genital Anomalies \ Other - malformations of female genitalia
Genital Anomalies \ Other - malformations of male genitalia
Skeletal & Limb Anomalies \ Adactyly (absent fingers/toes)
Skeletal & Limb Anomalies \ Bowed/curved long bone(s)
Skeletal & Limb Anomalies \ Club foot (talipes equinovarus) - bilateral
Skeletal & Limb Anomalies \ Club foot (talipes equinovarus) - unilateral
Skeletal & Limb Anomalies \ Congenital hip dislocation/dysplasia
Skeletal & Limb Anomalies \ Craniosynostosis
Skeletal & Limb Anomalies \ Ectrodactyly (lobster-claw/cleft hand)
Skeletal & Limb Anomalies \ Hypotonia, unspecified
Skeletal & Limb Anomalies \ Limb reduction defect - lower limb
Skeletal & Limb Anomalies \ Limb reduction defect - upper limb
Skeletal & Limb Anomalies \ Limb reduction defects of unspecified limb
Skeletal & Limb Anomalies \ Osteogenesis imperfecta
Skeletal & Limb Anomalies \ Polydactyly - feet
Skeletal & Limb Anomalies \ Polydactyly - hands
Skeletal & Limb Anomalies \ Skeletal dysplasia
Skeletal & Limb Anomalies \ Syndactyly - feet
Skeletal & Limb Anomalies \ Syndactyly - hands
Skeletal & Limb Anomalies \ Congenital malformations of the musculoskeletal system
Skeletal & Limb Anomalies \ Other - malformations of the spine & bony thorax (not including spina bifida)
Skeletal & Limb Anomalies \ Other - malformations of the limb(s)
Other Anomalies/Patterns/Syndromes \ Congenital constriction bands/amniotic bands
Other Anomalies/Patterns/Syndromes \ Noonan syndrome/Rasopathies
Other Anomalies/Patterns/Syndromes \ Pierre Robin Sequence
Other Anomalies/Patterns/Syndromes \ Potter's syndrome/sequence
Other Anomalies/Patterns/Syndromes \ Other - genetic syndrome
Lymphatic Anomalies & Hydrops \ Cystic hygroma
Lymphatic Anomalies & Hydrops \ Fetal ascites
Lymphatic Anomalies & Hydrops \ Hydrops fetalis
Lymphatic Anomalies & Hydrops \ Increased nuchal translucency (>= 3.5 mm)
Lymphatic Anomalies & Hydrops \ Pleural effusion(s) (hydrothorax)
Chromosomal Anomalies \ 22Q11.2 deletion syndrome/DiGeorge syndrome
Chromosomal Anomalies \ 47, XYY
Chromosomal Anomalies \ Down syndrome/Trisomy 21
Chromosomal Anomalies \ Edwards syndrome/Trisomy 18
Chromosomal Anomalies \ Klinefelter syndrome (47, XXY)
Chromosomal Anomalies \ Patau syndrome/Trisomy 13
Chromosomal Anomalies \ Triple X syndrome (47, XXX)
Chromosomal Anomalies \ Triploidy/polyploidy
Chromosomal Anomalies \ Turner syndrome (45, X)
Chromosomal Anomalies \ Chromosome abnormality - other
Skin/Hair/Nails \ Congenital Ichthyosis
Skin/Hair/Nails \ Cutis Aplasia
Skin/Hair/Nails \ Epidermolysis Bullosa
Skin/Hair/Nails \ Other - congenital malformations of skin
Skin/Hair/Nails \ Other - congenital malformations of hair
Skin/Hair/Nails \ Other - congenital malformations of nails
Twins \ Acardiac Twin (TRAP Sequence)
Twins \ Selective Intrauterine Growth Restriction (sIUGR)
Twins \ Twin anemia polycythemia (TAPS)
Twins \ Twin-twin transfusion syndrome (TTTS)
Twins \ Other - malformation(s) of twins
Other/Unknown \ Other Congenital Malformations, Not Elsewhere Classified
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D0025ICD
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Newborn Congenital Anomalies Confirmed
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Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
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Data Definition:
Identify all confirmed/diagnosed congenital anomalies; include treated and untreated.
Pick List Value:
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Absent cavum septum pellucidum (CSP)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Absent cerebellar vermis
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Acrania or Anencephaly
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Arachnoid cyst(s)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Arnold Chiari Malformation
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Aqueductal stenosis
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Corpus Callosum - Agenesis (ACC)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Corpus Callosum - Hypoplasia
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Dandy walker malformation/ variant (DWM)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Encephalocele
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Enlarged cisterna magna
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Holoprosencephaly
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Hydrocephalus
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Hypotonia, unspecified
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Lissencephaly
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Macrocephaly
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Microcephaly
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Polymicrogyria
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Posterior fossa cyst
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Sacral agenesis
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Sacrococcygeal teratoma (SCT)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Seizures
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Spina Bifida with hydrocephalus
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Spina Bifida without hydrocephalus
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Ventriculomegaly - Mild-Moderate (11-14.9 mm)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Ventriculomegaly - Severe (>15 mm)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Other - malformations of the nervous system
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Other - malformations of the brain
Eye Anomalies \ Anophthalmos
Eye Anomalies \ Congenital cataract
Eye Anomalies \ Congenital glaucoma
Eye Anomalies \ Microphthalmos
Eye Anomalies \ Other - malformations of eye
Ear, Face and Neck Anomalies \ Choanal atresia
Ear, Face and Neck Anomalies \ Ears - Anotia
Ear, Face and Neck Anomalies \ Ears - Microtia
Ear, Face and Neck Anomalies \ Macroglossia
Ear, Face and Neck Anomalies \ Micrognathia
Ear, Face and Neck Anomalies \ Nose - Absent
Ear, Face and Neck Anomalies \ Nose - Hypoplastic
Ear, Face and Neck Anomalies \ Retrognathia
Ear, Face and Neck Anomalies \ Other - malformations of ear
Ear, Face and Neck Anomalies \ Other - malformations of the face and neck
Oro-facial Clefts \ Cleft lip
Oro-facial Clefts \ Cleft lip with cleft palate
Oro-facial Clefts \ Cleft palate
Oro-facial Clefts \ Pierre Robin Sequence
Thorax Anomalies \ Bronchopulmonary sequestration (BPS)
Thorax Anomalies \ Congenital high airway obstruction (CHAOS)
Thorax Anomalies \ Cystic adenomatous malformation of lung (CCAM)
Thorax Anomalies \ Diaphragmatic hernia (CDH)
Thorax Anomalies \ Other - congenital malformations of lung
Thorax Anomalies \ Other - malformations of the diaphragm
Cardiovascular Anomalies \ Aortic arch - Double
Cardiovascular Anomalies \ Aortic arch - Interrupted
Cardiovascular Anomalies \ Aortic arch - Right
Cardiovascular Anomalies \ Aortic atresia/Hypoplastic aortic arch
Cardiovascular Anomalies \ Aortic valve stenosis
Cardiovascular Anomalies \ Arrhythmia
Cardiovascular Anomalies \ Atrial isomerism (heterotaxy) - Left
Cardiovascular Anomalies \ Atrial isomerism (heterotaxy) - Right
Cardiovascular Anomalies \ Atrial septal defect (ASD)
Cardiovascular Anomalies \ Atrioventricular septal defect (AVSD)
Cardiovascular Anomalies \ Cardiomegaly
Cardiovascular Anomalies \ Coarctation of aorta
Cardiovascular Anomalies \ Congenital heart block (complete and incomplete)
Cardiovascular Anomalies \ Dextrocardia
Cardiovascular Anomalies \ Discordant atrioventricular connection
Cardiovascular Anomalies \ Double inlet ventricle (Single ventricle)
Cardiovascular Anomalies \ Double outlet right ventricle (DORV)
Cardiovascular Anomalies \ Ebstein anomaly
Cardiovascular Anomalies \ Hypoplastic left heart (HLHS)
Cardiovascular Anomalies \ Hypoplastic right heart (HRHS)
Cardiovascular Anomalies \ Mitral valve atresia
Cardiovascular Anomalies \ Mitral valve insufficiency
Cardiovascular Anomalies \ Mitral valve stenosis
Cardiovascular Anomalies \ Patent ductus arteriosus (PDA) - >37 weeks
Cardiovascular Anomalies \ Patent/Persistent foramen ovale (PFO)/Premature closure of atrial septum
Cardiovascular Anomalies \ Pericardial effusion
Cardiovascular Anomalies \ Pulmonary valve atresia
Cardiovascular Anomalies \ Pulmonary valve dysplasia
Cardiovascular Anomalies \ Pulmonary valve stenosis
Cardiovascular Anomalies \ Situs inversus (cardiac and abdominal)
Cardiovascular Anomalies \ Tetralogy of Fallot (TOF)
Cardiovascular Anomalies \ Total anomalous pulmonary venous connection (TAPVC)/Partial anomalous pulmonary venous connection (PAPVC)
Cardiovascular Anomalies \ Transposition of great vessels (TGV)
Cardiovascular Anomalies \ Tricuspid atresia/stenosis
Cardiovascular Anomalies \ Tricuspid regurgitation
Cardiovascular Anomalies \ Tricuspid valve dysplasia
Cardiovascular Anomalies \ Truncus arteriosus (common arterial truncus)
Cardiovascular Anomalies \ Vascular ring
Cardiovascular Anomalies \ Vena cava, bilateral superior (SVC)
Cardiovascular Anomalies \ Vena cava, interrupted inferior (IVC)
Cardiovascular Anomalies \ Vena cava, persistent left superior (SVC)
Cardiovascular Anomalies \ Ventricular disproportion (RV/LV discrepancy)
Cardiovascular Anomalies \ Ventricular septal defect (VSD)
Cardiovascular Anomalies \ Other cardiac malformations
Abdominal Wall Defects \ Gastroschisis
Abdominal Wall Defects \ Omphalocele (exomphalos)
Abdominal Wall Defects \ Other - congenital malformations of abdominal wall
Gastrointestinal & Abdominal Anomalies \ Abnormal stomach (including small/absent stomach)
Gastrointestinal & Abdominal Anomalies \ Biliary atresia (atresia of bile ducts)
Gastrointestinal & Abdominal Anomalies \ Bowel obstruction
Gastrointestinal & Abdominal Anomalies \ Duodenal atresia/stenosis
Gastrointestinal & Abdominal Anomalies \ Esophageal atresia (without fistula)
Gastrointestinal & Abdominal Anomalies \ Esophageal atresia with tracheo-esophageal fistula (TEF)
Gastrointestinal & Abdominal Anomalies \ Tracheoesophageal fistula (TEF) without esophageal atresia
Gastrointestinal & Abdominal Anomalies \ Hirschsprung disease
Gastrointestinal & Abdominal Anomalies \ Imperforate anus (congenital absence, atresia, stenosis of anus)
Gastrointestinal & Abdominal Anomalies \ Large intestine atresia/stenosis
Gastrointestinal & Abdominal Anomalies \ Pyloric stenosis
Gastrointestinal & Abdominal Anomalies \ Rectal atresia/stenosis with/without fistula
Gastrointestinal & Abdominal Anomalies \ Small bowel, abnormal
Gastrointestinal & Abdominal Anomalies \ Small intestine atresia/stenosis (excluding duodenum)
Gastrointestinal & Abdominal Anomalies \ Umbilical hernia
Gastrointestinal & Abdominal Anomalies \ Other - malformations of gastrointestinal system
Urinary Anomalies \ Bladder/cloacal exstrophy
Urinary Anomalies \ Congenital hydronephrosis
Urinary Anomalies \ Cystic kidneys - other
Urinary Anomalies \ Duplex kidney/collecting system
Urinary Anomalies \ Echogenic kidney(s)
Urinary Anomalies \ Ectopic/pelvic kidney
Urinary Anomalies \ Lower urinary tract obstruction
Urinary Anomalies \ Megacystis
Urinary Anomalies \ Megaureter
Urinary Anomalies \ Multicystic dysplastic kidney(s)
Urinary Anomalies \ Polycystic kidney, autosomal dominant
Urinary Anomalies \ Polycystic kidney, autosomal recessive
Urinary Anomalies \ Posterior urethral valves (PUV)
Urinary Anomalies \ Prune belly
Urinary Anomalies \ Renal agenesis - bilateral
Urinary Anomalies \ Renal agenesis - unilateral
Urinary Anomalies \ Renal cyst
Urinary Anomalies \ Renal Dysplasia
Urinary Anomalies \ Ureterocoele
Urinary Anomalies \ Other - malformations of the urinary system
Genital Anomalies \ Ambiguous genitalia/Indeterminate sex
Genital Anomalies \ Cryptorchidism/undescended testicle(s) >37 weeks
Genital Anomalies \ Epispadias
Genital Anomalies \ Hydrocoele
Genital Anomalies \ Hypospadias
Genital Anomalies \ Other - malformations of female genitalia
Genital Anomalies \ Other - malformations of male genitalia
Skeletal & Limb Anomalies \ Adactyly (absent fingers/toes)
Skeletal & Limb Anomalies \ Bowed/curved long bone(s)
Skeletal & Limb Anomalies \ Club foot (talipes equinovarus) - bilateral
Skeletal & Limb Anomalies \ Club foot (talipes equinovarus) - unilateral
Skeletal & Limb Anomalies \ Congenital hip dislocation/dysplasia
Skeletal & Limb Anomalies \ Craniosynostosis
Skeletal & Limb Anomalies \ Ectrodactyly (lobster-claw/cleft hand)
Skeletal & Limb Anomalies \ Hypotonia, unspecified
Skeletal & Limb Anomalies \ Limb reduction defect - lower limb
Skeletal & Limb Anomalies \ Limb reduction defect - upper limb
Skeletal & Limb Anomalies \ Limb reduction defects of unspecified limb
Skeletal & Limb Anomalies \ Osteogenesis imperfecta
Skeletal & Limb Anomalies \ Polydactyly - feet
Skeletal & Limb Anomalies \ Polydactyly - hands
Skeletal & Limb Anomalies \ Skeletal dysplasia
Skeletal & Limb Anomalies \ Syndactyly - feet
Skeletal & Limb Anomalies \ Syndactyly - hands
Skeletal & Limb Anomalies \ Congenital malformations of the musculoskeletal system
Skeletal & Limb Anomalies \ Other - malformations of the spine & bony thorax (not including spina bifida)
Skeletal & Limb Anomalies \ Other - malformations of the limb(s)
Other Anomalies/Patterns/Syndromes \ Congenital constriction bands/amniotic bands
Other Anomalies/Patterns/Syndromes \ Noonan syndrome/Rasopathies
Other Anomalies/Patterns/Syndromes \ Pierre Robin Sequence
Other Anomalies/Patterns/Syndromes \ Potter's syndrome/sequence
Other Anomalies/Patterns/Syndromes \ Other - genetic syndrome
Lymphatic Anomalies & Hydrops \ Cystic hygroma
Lymphatic Anomalies & Hydrops \ Fetal ascites
Lymphatic Anomalies & Hydrops \ Hydrops fetalis
Lymphatic Anomalies & Hydrops \ Increased nuchal translucency (>= 3.5 mm)
Lymphatic Anomalies & Hydrops \ Pleural effusion(s) (hydrothorax)
Chromosomal Anomalies \ 22Q11.2 deletion syndrome/DiGeorge syndrome
Chromosomal Anomalies \ 47, XYY
Chromosomal Anomalies \ Down syndrome/Trisomy 21
Chromosomal Anomalies \ Edwards syndrome/Trisomy 18
Chromosomal Anomalies \ Klinefelter syndrome (47, XXY)
Chromosomal Anomalies \ Patau syndrome/Trisomy 13
Chromosomal Anomalies \ Triple X syndrome (47, XXX)
Chromosomal Anomalies \ Triploidy/polyploidy
Chromosomal Anomalies \ Turner syndrome (45, X)
Chromosomal Anomalies \ Chromosome abnormality - other
Skin/Hair/Nails \ Congenital Ichthyosis
Skin/Hair/Nails \ Cutis Aplasia
Skin/Hair/Nails \ Epidermolysis Bullosa
Skin/Hair/Nails \ Other - congenital malformations of skin
Skin/Hair/Nails \ Other - congenital malformations of hair
Skin/Hair/Nails \ Other - congenital malformations of nails
Twins \ Acardiac Twin (TRAP Sequence)
Twins \ Selective Intrauterine Growth Restriction (sIUGR)
Twins \ Twin anemia polycythemia (TAPS)
Twins \ Twin-twin transfusion syndrome (TTTS)
Twins \ Other - malformation(s) of twins
Other/Unknown \ Other Congenital Malformations, Not Elsewhere Classified
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F0053
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Pregnancy/Birth outcome
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Antenatal General (AG), Birth Child (BC), Labour & Birth Mother (LBM), Postpartum Mother (PPM)
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Data Definition:
Outcome of the pregnancy/birth, including live birth, stillbirth, termination, and loss.
BORN encourages all hospitals to complete a Labour Birth encounter for all pregnancy losses.
Pick List Value:
Pregnancy Loss <20 weeks and <500 gms \ Spontaneous Miscarriage
Pregnancy Loss <20 weeks and <500 gms \ Termination
Stillbirth at >=20wks or >=500gms \ Spontaneous - Occurred during antepartum period
Stillbirth at >=20wks or >=500gms \ Spontaneous - Occurred during intrapartum period
Stillbirth at >=20wks or >=500gms \ Termination
|
FAN0029
|
Neonatal Transfer Hospital To
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary.
Data Definition:
The name of the facility (outside your hospital) where the infant was transferred.
|
FAN0100
|
Venous cord blood base excess / deficit
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
Indicate results of venous umbilical cord blood sampling indicating base excess or deficit reported by birth hospital.
|
FAN0101
|
Venous cord blood pH
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
Indicate results of venous umbilical cord blood pH as reported by birth hospital. If results include '<' enter the next lowest value to one decimal place.
|
FAN0102
|
Arterial cord blood base excess / deficit
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
Results of arterial umbilical cord blood sampling indicating base excess or deficit as reported by birth hospital.
|
FAN0103
|
Arterial Cord Blood pH
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
Results of arterial umbilical cord blood pH as reported by birth hospital.
|
M0503
|
Type of Birth (Calculated)
|
Birth Child (BC), Labour & Birth Mother (LBM), Postpartum Child (PPC), Postpartum Mother (PPM)
|
Data Definition:
When entering Type of Birth in the maternal encounters in the event of multiple births, enter the highest intervention. On the child encounters, enter the actual Type of Birth for each infant.
|
M0532
|
MW - EMS Attend Home
|
Birth Child (BC), Postpartum Child (PPC), Postpartum Mother (PPM)
|
Data Definition:
Indication that Emergency Medical Services were called to home during pregnancy, intrapartum or immediate post-partum period.
|
M4582
|
Type of Birth
|
Birth Child (BC), Labour & Birth Mother (LBM), Postpartum Child (PPC), Postpartum Mother (PPM)
|
Data Definition:
Indicates vaginal or cesarean birth.
|
MW001564
|
MW - Is the newborn in midwifery care
|
Birth Child (BC), Postpartum Child (PPC)
|
Data Definition:
Indicates whether the infant is in midwifery care.
|
MW0019
|
MW - Infant Consult
|
Birth Child (BC), Postpartum Child (PPC)
|
Data Definition:
MW - Infant Consult
|
MW0059
|
MW - Infant Reason for Consult
|
Birth Child (BC), Postpartum Child (PPC)
|
Data Definition:
List of Infant conditions or complications resulting in consultation with physician and/or transfer of care and/or use of hospital services.
Pick List Value:
Findings on newborn physical exam
Followup related to prenatal tests/screens
NAS - Neonatal Abstinence Syndrome
Neonatal Birth Complication \ Brachial plexus injury
Neonatal Birth Complication \ Caput succedaneum
Neonatal Birth Complication \ Cephalohematoma
Neonatal Birth Complication \ Clavicular fracture
Neonatal Birth Complication \ Facial nerve injury
Neonatal Birth Complication \ Birth injury - other
Abnormal Newborn Blood Spot Screen
Hyperbilirumenemia requiring treatment
|
MW0059A
|
MW - Infant Reason for Consult All
|
Birth Child (BC), Postpartum Child (PPC)
|
Pick List Value:
Findings on newborn physical exam
Followup related to prenatal tests/screens
NAS - Neonatal Abstinence Syndrome
Neonatal Birth Complication \ Brachial plexus injury
Neonatal Birth Complication \ Caput succedaneum
Neonatal Birth Complication \ Cephalohematoma
Neonatal Birth Complication \ Clavicular fracture
Neonatal Birth Complication \ Facial nerve injury
Neonatal Birth Complication \ Birth injury - other
Abnormal Newborn Blood Spot Screen
Hyperbilirumenemia requiring treatment
|
MW0060
|
MW - Infant Transfer of Care Returned
|
Birth Child (BC), Postpartum Child (PPC)
|
Data Definition:
When the infant's care is transferred back to the midwife.
|
MW0061
|
MW - Infant Outpatient (+Emergency) hospital services
|
Birth Child (BC)
|
Data Definition:
For each listed infant condition or complication, indicates need for outpatient hospital services.
|
MW0068
|
MW - Infant Transfer of Care
|
Birth Child (BC), Postpartum Child (PPC)
|
Data Definition:
For each listed infant condition or complication, indicates if there was a transfer from midwifery care.
|
MW0100
|
MW - Consult/Transfer of Care/Emergency Flag
|
Antenatal General (AG), Birth Child (BC), Labour & Birth Mother (LBM), Postpartum Child (PPC), Postpartum Mother (PPM)
|
Data Definition:
Indicates if there were there any consults, transfers of care, or use of hospital/outpatient/emergency services during that period.
|
MW0102
|
MW - Infant Consult Reason Other
|
Birth Child (BC), Postpartum Child (PPC)
|
Data Definition:
Other infant condition or complication
|
MW0105
|
MW - Consult Reason Comments
|
Antenatal General (AG), Birth Child (BC), Labour & Birth Mother (LBM), Postpartum Child (PPC), Postpartum Mother (PPM)
|
BORN collects this variable but due to personal health information (PHI) or sensitivity it is not available for data request.
Data Definition:
Comments about the reason for the consult, transfer of care or the use of hospital/outpatient/emergency services.
|
MW0107
|
MW - Neonatal Transport to Hospital Flag
|
Birth Child (BC), Postpartum Child (PPC)
|
Data Definition:
Indicates if infant was transported to hospital in the postpartum period, defined as 1 hour post-birth to discharge from midwifery care.
|
MW0108
|
MW - Reason(s) for Transport
|
Birth Child (BC), Postpartum Child (PPC), Postpartum Mother (PPM)
|
Data Definition:
Clinical indication(s) for transport to hospital.
Pick List Value:
Maternal clinical indication
Other neonatal clinical indication
Other maternal clinical indication
Neonatal clinical indication
|
MW0109
|
MW - Primary Reason for Transport
|
Birth Child (BC), Postpartum Child (PPC), Postpartum Mother (PPM)
|
Data Definition:
Primary reason for transport to hospital, chosen from the list of reason(s) for transport.
Pick List Value:
Maternal clinical indication
Other neonatal clinical indication
Other maternal clinical indication
Neonatal clinical indication
|
MW0111
|
MW - EMS Transport Flag
|
Birth Child (BC), Postpartum Child (PPC), Postpartum Mother (PPM)
|
Data Definition:
Indicates if Emergency Medical Services (EMS) was required for transport to hospital.
|
MW0112
|
MW - EMS Transport Barrier
|
Birth Child (BC), Postpartum Child (PPC), Postpartum Mother (PPM)
|
Data Definition:
Any barrier to transport by Emergency Medical Services (EMS).
Pick List Value:
Delayed arrival time of EMS
|
MW4465
|
Was rationale for transfer of care due to hospital/physician protocol?
|
Antenatal General (AG), Birth Child (BC), Labour & Birth Mother (LBM), Postpartum Child (PPC), Postpartum Mother (PPM)
|
Data Definition:
There are multiple reasons why a midwife may choose to transfer care, including midwifery judgement, scope of practice limitations as defined by the midwifery regulatory body, and hospital/physician protocol. Was this consultation/transfer of care ONLY because of hospital/physician protocol?
|
MW4466
|
Was rationale for consult due to hospital/physician protocol?
|
Antenatal General (AG), Birth Child (BC), Labour & Birth Mother (LBM), Postpartum Child (PPC), Postpartum Mother (PPM)
|
Data Definition:
There are multiple reasons why a midwife may choose to consult, including midwifery judgement, scope of practice limitations as defined by the midwifery regulatory body, and hospital/physician protocol. Was this consultation/transfer of care ONLY because of hospital/physician protocol?
|
MWPM011
|
MW - Was care of client transferred back to midwifery
|
Birth Child (BC), Labour & Birth Mother (LBM), Postpartum Child (PPC), Postpartum Mother (PPM)
|
|
MWUNRETC
|
MW - Unreturned Transfer of Care
|
Antenatal General (AG), Birth Child (BC), Labour & Birth Mother (LBM), Postpartum Child (PPC), Postpartum Mother (PPM)
|
|
N0002
|
Newborn Date of Birth
|
Birth Child (BC), Healthy Babies Healthy Children (HBHC), Labour & Birth Mother (LBM), Newborn Screening Ontario (NSO), Postpartum Child (PPC), Postpartum Mother (PPM)
|
This variable is available for release but with restriction or approval from appropriate stakeholder.
Data Definition:
Infant date of birth (day/month/year).
|
N0005
|
Birth Location
|
Birth Child (BC), Healthy Babies Healthy Children (HBHC), Labour & Birth Mother (LBM), Newborn Screening Ontario (NSO), Neonatal Intensive Care Unit (NICU), NSO Diagnostic Evaluation Report Form (DERF), Postpartum Child (PPC), Postpartum Mother (PPM)
|
This variable is available for release but with restriction or approval from appropriate stakeholder.
Data Definition:
Location where the birth occurred (hospital, home, other, etc.).
|
N0006
|
Time of Birth
|
Birth Child (BC), Healthy Babies Healthy Children (HBHC), Labour & Birth Mother (LBM), Newborn Screening Ontario (NSO), Postpartum Mother (PPM)
|
This variable is available for release but with restriction or approval from appropriate stakeholder.
Data Definition:
Time when infant is born (24 hour clock).
|
N0008
|
APGAR1
|
Birth Child (BC), Healthy Babies Healthy Children (HBHC), Neonatal Intensive Care Unit (NICU)
|
Data Definition:
APGAR Score at 1 minute of age. Includes five components: Appearance (color), Pulse (heart rate), Grimace (reflexes), Activity (muscle tone), and Respiration (breathing), each given a score of 0, 1, or 2 (total score of 0-10).
|
N0009
|
APGAR5
|
Birth Child (BC), Healthy Babies Healthy Children (HBHC), Neonatal Intensive Care Unit (NICU)
|
Data Definition:
APGAR Score at 5 minutes of age. Includes five components: Appearance (color), Pulse (heart rate), Grimace (reflexes), Activity (muscle tone), and Respiration (breathing), each given a score of 0, 1, or 2 (total score of 0-10).
|
N0010
|
APGAR10
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU)
|
Data Definition:
APGAR Score at 10 minutes of age. A 10 minute Apgar is usually only done if the 5 minute score is less than 5. Includes five components: Appearance (color), Pulse (heart rate), Grimace (reflexes), Activity (muscle tone), and Respiration (breathing), each given a score of 0, 1, or 2 (total score of 0-10).
|
N0012
|
Birth Weight
|
Birth Child (BC), Healthy Babies Healthy Children (HBHC), Newborn Screening Ontario (NSO), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
This variable is available for release but with restriction or approval from appropriate stakeholder.
Data Definition:
Infant birth weight (grams).
|
N0012NO
|
Birth Weight Is Unknown
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
Infant birth weight is not known.
|
N0014
|
Gestational Age at Birth (weeks+days; calculated using EDB and DOB)
|
Birth Child (BC), Healthy Babies Healthy Children (HBHC), Labour & Birth Mother (LBM), Newborn Screening Ontario (NSO), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
This variable is available for release but with restriction or approval from appropriate stakeholder.
Data Definition:
Infant's gestational age at the time of birth calculated using "Estimated Date of Birth" and "Newborn Date of Birth" data elements in weeks and days.
|
N0021
|
Neonatal Birth Complications
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
All complications and/or conditions noted at the time of birth of the infant.
|
N0023
|
Newborn Resuscitation (first 30 minutes of life only)
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU)
|
Data Definition:
All methods of resuscitation provided at the delivery within the first 30 min of life only.
Pick List Value:
CPAP + Room Air (21% oxygen)
PPV + Room Air (21% oxygen)
Laryngeal mask airway (LMA)
Intubation for tracheal suction
|
N0054DT
|
Infant Discharge Date
|
Birth Child (BC), Healthy Babies Healthy Children (HBHC), Postpartum Child (PPC)
|
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary.
Data Definition:
The day/month/year of infant discharge from hospital.
|
N0054TM
|
Neonatal Transfer/Discharge Time
|
Birth Child (BC), Postpartum Child (PPC)
|
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary.
Data Definition:
Time that the neonate was transferred or discharged from care/unit.
|
N0060
|
Neonatal/Infant Death
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary.
Data Definition:
Indication of whether or not neonatal death occurred. While neonatal death technically only includes the first 28 days of life, includes infant death that occurs after that period, while in your care.
Pick List Value:
Yes-With Termination of Pregnancy
|
N0138
|
Neonatal/Infant Death Date
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary.
Data Definition:
Day/month/year of neonatal death.
|
N0139
|
Neonatal/Infant Death Time
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary.
Data Definition:
Time (24 hour clock) of neonatal death.
|
N0141
|
Age at Neonatal Death
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
Calculated Age at Neonatal Death
|
N0146
|
Neonatal Transfer to NICU
|
Birth Child (BC)
|
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary.
Data Definition:
Identifies if infant has been transferred to the NICU within the first hour of life.
Pick List Value:
Transfer to NICU other hospital/organization
Transfer to NICU same hospital
|
N0201
|
Presentation Type (Child)
|
Birth Child (BC)
|
Data Definition:
Presentation, including lead presenting part of the infant at birth.
Pick List Value:
Cephalic \ Cephalic Type Unknown
Breech \ Breech Type Unknown
Transverse/Malpresentation
|
N0202
|
Forceps/vacuum used vaginally
|
Birth Child (BC)
|
Data Definition:
Indicates instruments used to attempt and/or successfully assist a vaginal birth. Do not include if these instruments were used during a cesarean birth only.
|
N0213
|
Neonatal Resuscitation - initial gas used in first 30 minutes of life
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU)
|
Data Definition:
The percentage of oxygen (21%-100%) used INITIALLY for resuscitation in the first 30 min of life only.
|
N0214
|
Neonatal Resuscitation - maximum % of O2 used in first 30 minutes of life
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Enter the maximum concentration of oxygen (>21%) used during resuscitation of an infant in the first 30 minutes of life. Values should be 22-100%. An O2 value of 21% is considered room air.
|
N4350
|
Infant Early attachment
|
Birth Child (BC)
|
Data Definition:
Infant early attachment refers to skin-to-skin contact within the first two hours after birth.
Pick List Value:
Yes - skin-to-skin contact with birth mother uninterrupted for at least 1 hour within the first 2 hours post-birth
Yes - skin-to-skin contact with birth mother for less than 1 hour within the first 2 hours post-birth
Yes - skin-to-skin contact with a person other than the birth mother within the first 2 hours post-birth
No skin-to-skin contact within the first 2 hours post-birth
Unknown if skin-to-skin positioning took place
|
N4351
|
Reason for no skin-to-skin
|
Birth Child (BC)
|
Data Definition:
All reasons why skin-to-skin contact of any kind did not occur within the first two hours after birth.
Pick List Value:
Maternal medical indications
Newborn medical indications
|
N4352
|
Baby positioned to breastfeed
|
Birth Child (BC)
|
Data Definition:
Indicates whether the baby was positioned to breastfeed within two hours of birth.
Yes - Indicates that the baby was positioned to breastfeed within two hours of birth.
No - Indicates that the baby was not positioned to breastfeed within two hours of birth for any reason.
Unknown - It is not known if the baby was positioned to breastfeed within two hours of birth.
|
N4353
|
Baby breastfeeding behaviours observed
|
Birth Child (BC)
|
Data Definition:
If baby has been positioned to breastfeed within two hours of birth, indicates all observed breastfeeding behaviours.
Pick List Value:
Rooting or nuzzling or licking
|
N4542
|
Did NICU perform/assist with the resuscitation that was done in the first 30 mins of life?
|
Birth Child (BC)
|
Data Definition:
Indicates if the NICU team independently performed, or assisted the birthing team, with the initial resuscitation of the infant in the first 30 minutes of life. If the NICU team was not there or was there but did not participate, then select no.
|
N4543
|
Is infant at-risk for hypoglycemia?
|
Birth Child (BC)
|
Data Definition:
Indicate if infant was at risk for hypoglycemia or not and the cause for screening. Can pick more than one.
Pick List Value:
Yes - Small-for-gestational-age (SGA), weight <10th %ile
Yes - Large-for-gestational-age (LGA), weight >90th %ile
Yes - Infants of diabetic mothers/pregnant individuals
Yes - Preterm (<37 weeks gestational age)
Yes - Intrauterine growth restriction (IUGR)
Yes - Labetalol use during pregnancy
Yes - Late preterm exposure (34+0 to 36+6 weeks) to antenatal steroids
Yes - Metabolic conditions (e.g., CPT-1 deficiency, urea cycle defects, etc.)
Yes - Syndromes associated with hypoglycemia (e.g., Beckwith-Wiedemann)
|
N4544
|
Is at-risk infant asymptomatic?
|
Birth Child (BC)
|
Data Definition:
Select if infant does NOT have any of the following symptoms: jitteriness or tremors, cyanotic episodes, convulsions, intermittent apneic spells or tachypnea, weak or high-pitched crying, limpness or lethargy, difficulties feeding, and eye-rolling. Sweating, sudden pallor, hypothermia, and cardiac arrest and failure may also be symptoms of hypoglycemia.
|
N4545
|
Was glucose monitoring being done?
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
Indicates if blood glucose monitoring via bedside monitoring (point-of-care) and/or laboratory analysis was being done according to the Canadian Pediatric Society's guidelines.
|
N4546
|
Was Oral Dextrose/Gel given?
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
Indicates if oral dextrose/gel was given to the infant for the purposes of stabilizing blood sugars.
|
N4564
|
Cord Clamping Duration
|
Birth Child (BC)
|
Data Definition:
Indicate the duration between infant time of birth and deferred cord clamping.
Pick List Value:
>60 seconds, exact duration unknown
|
N4565
|
Reason For Neonatal Transfer
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
All reasons why the infant was transferred to the NICU.
Pick List Value:
Requires higher level of care
Keeping baby and mother together
Repatriation/Care closer to home
Transfer back to birth hospital
|
ORGHOSP001
|
HOSP Name
|
Antenatal General (AG), Birth Child (BC), Labour & Birth Mother (LBM), Postpartum Mother (PPM)
|
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary.
Data Definition:
Name of Hospital Site.
|
R0038
|
Birth Order
|
Birth Child (BC), Labour & Birth Mother (LBM), Newborn Screening Ontario (NSO)
|
This variable is available for release but with restriction or approval from appropriate stakeholder.
Data Definition:
Birth order of each baby (Twin A= first born, Twin B=second born, etc.) irrespective of live birth or stillbirth.
|
R0043
|
MW - MPG Name
|
Antenatal General (AG), Birth Child (BC), Labour & Birth Mother (LBM)
|
This variable is available for release but with restriction or approval from appropriate stakeholder.
Data Definition:
Name of Midwifery Practice Group
|
RPT003
|
NICU Admission Flag
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU)
|
Data Definition:
NICU Admission Flag is calculated in the APP DB based on enconter data. Value is stored in the Application Birth Aggregated record and then promoted to Reporting DB.
|
Y0020
|
Arterial cord blood test status
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Status of umbilical arterial cord blood test.
|
Y0030
|
Venous cord blood test status
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Status of umbilical venous cord blood test.
|
Y02091
|
Birth Hospital
|
Birth Child (BC), Healthy Babies Healthy Children (HBHC), Labour & Birth Mother (LBM), Newborn Screening Ontario (NSO), Neonatal Intensive Care Unit (NICU), NSO Diagnostic Evaluation Report Form (DERF), Postpartum Mother (PPM)
|
This variable is available for release but with restriction or approval from appropriate stakeholder.
Data Definition:
The name of the hospital where the birth occurred if Birth Location =hospital. Includes all Ontario hospitals with and without birthing units and some out of province and out of country hospitals.
|